'We saw a video of a child in Australia who had gone from barely able to function to thriving and having a great life,' he explains. It was as if she wasn’t there.'Įmerson continued to research, contacting hospitals and families all over the world and came across medical cannabis. It was risky – because we could lose her – but it had helped bring other patients round. 'Everyone said I had to keep fighting, none of them had been told about this ‘brain decay’ and so I started researching everything I could fought with the doctors to put my daughter into a very deep sedation, because that had been found to bring children out of serious seizures. Watch: Seth Rogan leads push for federal cannabis legislationĮmerson then put a message on a Facebook group for parents of children with similar conditions and received incredible support. I walked out of the front door of the hospital and even thought about throwing myself in front of a car, because what was the point? But something held me back.' It was very worrying and in July 2017, she ended up in intensive care where doctors told us – wrongly – that her brain was decaying and she was going to die. It’s the kind of extreme epilepsy that needs medication to come out of a seizure, so we were calling 999 and were in and out of hospital all the time. 'She began having epileptic seizures when she was around 11 months old. She is only one of two people with it in the UK and about 2,000 globally. 'At first, being a father was amazing and we had all these plans for the future but at 10 months we realised that she wasn’t meeting her normal milestones and couldn’t do things like sit up or roll over,' he says.Ī registrar at the hospital arranged for testing to be done and it was found that Jorja has something called the 1q43q44 deletion – a very rare chromosomal condition. It was when she was around 10 months old that Emerson – and his then partner Carly, Jorja’s mother – realised that something might be wrong with their baby girl. Read more: Girl with deadly heart condition home for Christmas after transplant We’ve got until February until her current prescription runs out, so we are really up against a deadline.' The fact they won’t engage with me is so frustrating. The court system does not send emails threatening sanctions if you do not appear in court.Īuthentic NYS Court emails are sent from the NYCOURTS.GOV domain Is the phone call or email authentic? If you have a question about whether a notice or a phone call is actually from the NYS Unified Court System, please call 1-800-Court-NY, (1-80).'I’ve also written to the prime minister – a father himself – but still no response. The court system does not send unsolicited emails or requests for personal information. Be on the Alert: if you are not involved in a court proceeding and have not supplied the NYS courts with an email address for receiving court notifications, the courts do not communicate with you by email.The attachment or link may infect your computer with a virus. The emails also may instruct recipients to read a court notice that is attached. Some emails suggest that you are the beneficiary of a large settlement in a lawsuit and that you need to reply to the email. They also typically warn that the court may proceed in their absence and that they will be sanctioned if they do not appear. Scam Emails: Scam emails typically instruct recipients to report to court on a specific day and time, and they often direct the recipient to bring documents and witnesses with them.

Do not give this kind of information to anyone claiming to represent the courts.

Fraudulent Phone Calls: The NYS Court System never asks, by phone, for financial or family information from members of the public.It is important to always be on the alert-especially if you do not have a case pending in a NYS court, or do not live in New York State, and therefore have no reason to be contacted by the court system. The scammers subsequently attempt to extort money from the frightened parents. Another hoax involves scammers contacting individuals claiming that that their child is ill or has been arrested.

Scammers also like to pretend that you are being called for jury service. Scammers often try to fool the public with fraudulent emails or phone calls that appear to be from the New York State (NYS) court system. It has come to our attention that scammers also fraudulently use the name or title of a Judge, Clerk, or other court staff in emails and will manipulate phone calls so that authentic court phone numbers appear on your Caller ID screen, but the calls are not actually coming from the court system. Never provide any personal information to an unknown caller. If you are unsure of the origin of an email, don’t open it, don’t reply to it and don’t click on any links within the message.

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